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Familial hypercholesterolemia (FH)

FH, an inherited condition, keeps LDL high from birth. Most people need more than one medicine. Here is what people with FH have tried.

Shared experiences, not medical advice. For decisions about your treatment, talk to your clinician.

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People like me
  • Age 30-39

    Atorvastatin

    Effective w/ side effects · Side effects: Fatigue · USD 9/mo · No prior auth needed

    Mild fatigue, tolerable, kept on it alongside newer therapy.

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  • Age 30-39

    Inclisiran (Leqvio)

    Well tolerated & effective · Side effects: Injection site reaction · USD 150/mo · Approved after appeal

    Mild soreness for 2-3 days after each dose, otherwise no issues.

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  • Age 50-59

    Alirocumab (Praluent)

    Well tolerated & effective · USD 25/mo · Approved first try

    Worked well for five years. Stopped only because of an insurance change.

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  • Age 50-59

    Enlicitide (Lipfendra)

    Well tolerated & effective · USD 330/mo · N/A-paid cash

    Has to be taken on an empty stomach, so I take it first thing and wait before coffee.

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Common questions

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Related medicines

AtorvastatinEzetimibeInclisiran (Leqvio)Alirocumab (Praluent)

Other topics

Statin intoleranceHigh Lp(a)High coronary calcium (CAC) score or plaquePCSK9 drug denied by insurance